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Real Life Testimonial: Controlling Type 1 Diabetes with the Paleo diet

This is part of an ongoing series of real life success stories from people all over the world who have been impacted by the Paleo lifestyle and The Paleo Solution. Read Kyp’s story below.

Hello,

My name is Kyp and I am a type 1 diabetic born on the 5th of May 1990 and diagnosed early August 2009. I wanted to contact you in regards to how eating a low carb paleo diet has helped me with my type 1 diabetes.

I guess I’ll start from the beginning.

Late 2008-August 2009. Over the course of the past nine months I had changed from a chubby 102 kilogram teenager who plays too many video games and ate too many Big Macs to several months later becoming a muscular and active (6 gym sessions per week) 92 kilogram young man. I thought that by adhering to the nutritional recommendations I was doing everything in my power to achieve an enlightened state of health. I simultaneously continued to lean out, six months later becoming a frail and disturbingly lean 70 kilogram male who looked like he needed to be sat down, force fed and watched to ensure he did not try to regurgitate what he had just swallowed.

Type 1 diabetes and the Paleo diet

I had been losing weight at a steady pace, somewhere in the vicinity of none at all to half a kilo per week until June. Once June hit my weight began to drop at an alarming rate, anywhere from 1 to 2 and a half kilos per week. Me being me I put this down to my increased effort with my highly intensive physical labour in the mornings, eating a ‘healthy’ diet full of whole grains, milk for calcium and protein, lots of potatoes and pasta in the evenings with some red or white meat, and an increased frequency of cardio vascular exercise. I was drinking gallons of water per day which I thought was due to the amount of exercise I was doing and I had began to grow increasingly tired in the evenings. I was slowly going to bed earlier and earlier getting an extra 2 to 2 and a half hours of sleep per night. I would wake constantly (every hour on the hour) and need to urinate. I would drink a half a glass of water and go back to sleep thinking nothing more of it as I thought that water is simply good for the body and the more you can drink the better.

August 2009 rolled around and my parents had invited me to go on a week long holiday with them to Fiji. I was exhausted from exerting myself so hard with work (or so at the time I thought was the reason) and took them up on their offer. On the flight over I drunk something like four cans of Coke (it was holiday time so I was relaxing on the diet and enjoying myself) and a bottle or two of water. My parents commented on the amount of liquid I was consuming with my father even telling me it was disgusting whilst having a dirty look on his face.

I had an unquenchable thirst. If losing 30 kilograms in nine months with the majority of it coming in the past several wasn’t clue enough this certainly should have been.

Sick in Fiji

We arrived at our hotel in Fiji. I had my own room and I started going to town on the ice cream, burgers and fries whilst having pina colada or two. After a day or two, food started to taste rotten, I still could not quench my thirst and I had lost all appetite. It was at this stage my mother asked if I’d like her to book me an appointment with a doctor. I agreed and the first available time was two or three days away.

I continued to try to force food down my throat as it tasted more and more rotten. I was growing increasingly exhausted despite being on holiday and I was still unable to quench my thirst.

The last night before the doctor’s appointment rolled around and it was HORRIBLE. I would wake every couple of hours with crippling stomach cramps. Now I’ve never broken a bone or had a tattoo or anything but these things were some of the worst pain I’d ever felt. I would wake in the pitch black and end up rolling off of my bed onto the floor due to not being able to get a break. These things were killing me. I have no idea why they happened. They’d never done so before and they never have since so I never bothered asking.

Morning time came and my father came to get me to take me to the doctor. I was unable to walk at this stage from being so weak so I had one arm over his shoulder whilst I slowly hobbled out to reception so we could get a taxi.

Diagnosis

We arrived at the doctors and I had to be wheel chaired in at this stage. I sat waiting in the lobby until it was my turn to see the doctor. We discussed with them the symptoms and they then put an IV drip into my arm. Oh my god!! I don’t know if it actually works this way but I could just feel my arm being refreshed slowly upwards from the point at which it was inserted. The doctor then told me I had type 1 diabetes. At this stage I didn’t care. Just keep the damn drip in!!

They then put me into an ambulance and took me to their hospital where I had to wait some more. This place was FILTHY. Dirt everywhere, blood dripping all over the floor, no real privacy.

I got put into a room there where my parents waited with me. The nurse came and asked me to give her a urine sample (testing for ketones I suspect?) which I did. I laid back down and slept for I believe what was an hour or two which was absolutely great for me but must have been a rather nerve wracking time for my parents as I don’t believe any of us knew what diabetes actually was at this stage.

The doctor finally came through, explained to us what diabetes is and how to manage it and that there is no known cause, preventative action or cure for it. “It could be genetic or it could just be something in the wind.”

We got back to the hotel what must have been that afternoon and I had the best sleep of my life. My father came and woke me for dinner, gave me my injection and then I was out to it for another 15 or so hours. I awoke hungry, without thirst and, thanks to the medication the doctors had given me for a tongue infection I’d contracted (apparently due in part to the diabetes), able to breathe without a rotten taste in my mouth.

Recovery

Fast forward six months I was back up to a healthy and muscular 82 kilos. I had put on 10 kilo of muscle in that first six weeks after being diagnosed and things were starting to look good. I began to eat OSM bars (because they gave one third of all your recommended daily requirements of nutrients), Subway twice a day (because bread is a staple food so it must be good for you), and changing my Weetabix for rolled oats (because whole grains are healthy right?). The diabetic clinic called me a “star patient” due to my exercising six days per week and following such a healthy diet coupled in fact with my rigorous high frequency of injections and low volume of insulin.

Then I found CrossFit.

CrossFit would be what I would consider to be a revolution in exercise. No more two to three hour gym sessions. No more doing cardio 5 times per week for 45 minutes to 2 hours at a time. No more arm curls. No more leg press. No more machines.

No, CrossFit was different. All these exercises I’d been told was dangerous I was being taught. They taught me how to clean. They taught me how to snatch. They taught me how to jerk. They taught me how to squat, and I mean REALLY squat. No more of this knee bending, no further than parallel stuff (as if I ever got anywhere close!). We were going RIGHT down. Hips bellow parallel, toes pointed out, arms and chest up, tight lumbar curve and pushing the knees outward whilst always being able to wiggle our toes due to having the “weight through the heels”.

CrossFit was all about being ready for the unknown and the unknowable. About increasing you work capacity and your power out put over short periods of time as well as longer periods of time. And it did this by giving you a constant variety of functional movements, teaching you the mechanics of such movements to the point you can do them consistently and then increasing the intensity to a high, unsustainable level. You had to learn not to be afraid of failure. If you fail, so what? You have nothing to prove to anybody but yourself. Just throw the weight on the bar and see what happens. See if you can’t do another rep before dropping off the pull up bar. See if you can’t run that little bit faster, or do fifty unbroken double-unders instead of five sets of ten.

CrossFit changed my perspective on a lot of things in life. Things weren’t as black and white as what I had been led to believe and this caused me to open my eyes and mind to all sides of any given story.

Enter Paleo

There was a top tier of athletes starting to emerge at the CrossFit box I was currently attending and we were getting through some work, but as is the case with all aspects of my life I always want to be the best so I started researching the top CrossFit athletes in the world and what they were eating to fuel their efforts. I found a common link amongst many of them that they were eating this thing called ‘Paleo’. “What’s a ‘Paleo’?” I wondered so I googled it. Turns out that this was the way cavemen ate in Paleolithic times. “But cavemen lived short brutish lives did they not?” Yes they did and this was due in part to the fact that you either hunt or you be hunted. You break a leg from falling off a cliff and you might as well be dead. There were no hospitals back then. There were no doctors. And there was nobody telling them they should be eating “healthy whole grains and plenty of calcium” everyday.

Our Paleolithic ancestors were strong, tall, lean and muscular. They had minimal signs, if any; of the many diseases we now face today. Why? Because there were no legumes back then. There was no dairy, and there were certainly no grains. It wasn’t until the advent of agriculture that the problems of these many diseases started to become apparent. The things we consider staples in our diet today (breads, cereals, pastas, milk, potatoes) just weren’t around until agriculture. We became too smart for our own good and as such the likes of our agricultural ancestors began to shrink in size. The density of their bones was so much less and the likes of tooth cavities became so much more frequent.

So what does this have to do with me? Well I then googled ‘Paleo Diabetes Type 1’ and came across a site and a post from a man by the name of Robb Wolf. It read, “Robb, I emailed you about a month or so ago. I just want to give you an update on my situation: I’ve lost about 15-20lbs. I’ve taken no insulin for 5 weeks and I’m type 1 Diabetic!. Because of my strict paleo diet(gluten and dairy free) my a1c is not going to be much higher than when I was taking crap load of insulin. My glucose has really stabilized in the low 100s (100-125) and I haven’t had a low at all during this time nor have I had extreme highs like when I was taking so much insulin. My blood pressure has dropped tremendously and my Internist thinks that my pancreas has jumped started again, because even when I have had a cheat meal my blood is responding in a completely different manner. We are going to do a c-peptide test again. I’ve also started to incorporate better sleeping patterns (trying to get 9-10 hours) and my fasting glucose is even better (lower) than before.”

I now had every reason to start and no reason not to. So I gave it a go. And as is always the case with myself, I threw myself straight into the deep end. Beef sausages with salad and olive oil for breakfast. Lamb chops and almonds for mid morning meal. Steak and almonds for lunch. Protein shake with banana both pre and post workout. Chicken breast with salad and olive oil for dinner.

Monday to Friday. Minimal insulin requirements, increased energy levels and sense of awareness, and several kilograms of weight loss.

Saturday morning. I finish training. Take my half a unit of insulin to account for the banana I’m about to consume. Half an hour late I’m hypoglycaemic. Take another banana. Ten minutes later still hypo. Consume another banana. Ten minutes later still hypo. One more banana. Ten minutes later my blood glucose has returned to a more level and I start to get excited with the prospect that I may have just had a remission in my supposedly incurable Type 1 diabetes.

Since then I have increased my work output dramatically, my numbers with the lifts are going up and my weight seems to be steady at a healthy, muscular and lean 83kg whilst being 6’.

Now I’m not saying that I am cured. Nor am I saying that everybody will get the same results (Robb Wolf stating that only 5% of his Type 1 Diabetic patients see a return in pancreatic function). What I am saying is that so long as I adhere to the conditions of a Paleolithic diet (Grain, Dairy and Legume free), train with a smart amount of frequency (Four to Five times per week. Anything more begins to become a bit much) and get good amounts of sleep (aiming for 8 – 9 and a half hours per night in a pitch black room) then my pancreas seems to produce insulin and prevent me from having to depend upon external sources.

I have strayed from this diet in the past and sometimes my pancreas stops creating insulin for a week, other times it has stopped for several months on end (the most recent case being the longest). My pancreas has of two days ago started to create insulin again and this time I am not going to abuse it by experimenting with different foods to the extent and volume I have in the past. One thing I have noticed with myself though is that my body HATES the sweetener ‘Malitol’ and I will be trying to stay away from this at all costs (It is a major ingredient in a lot of sugar free items along with ‘Sorbitol’)

All I can recommend for others is to just try it for thirty days, see how you look, feel and perform and go from there. It’s not a hard diet, you just don’t eat specific things. And hey, if you come to find that it works for you then that’s great, if not, then all you’ve missed out on is specific foods for thirty days.

What have you got to lose?

-Kyp

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33 Comments

  1. [...] This post was mentioned on Twitter by Sami Al Rais, Brandon Nolte. Brandon Nolte said: RT @robbwolf Real Life Testimonial: Controlling Type 1 Diabetes with the Paleo diet http://bit.ly/i05yxA [...]

  2. CanadianArcticPaleo says:

    Awesome!!!!

    Keep givin’r!

    Peace and Love from Canada.

  3. julianne says:

    Thanks so much for sharing your story. Inspiring, keep it up.

  4. Squatchy says:

    Big congrats, that’s awesome!
    For someone with Type 1 diabetes to regain pancreatic function is amazing, especially just with dietary changes. “It’s almost like this stuff actually works” :)

  5. Robin says:

    Simply amazing! And breathtaking :O

  6. Awesome Kyp. I’m also a type 1 and my story is very similar to yours! I came down with diabetes at age 26, and a few years later got into Crossfit and Paleo… it changed my life and got me very healthy.
    Shoot me an email, would love to talk more about this stuff– andariegoblog@gmail.com

  7. Stacy says:

    I’m blown away by your story, it’s truly inspirational! I wish more people would take control of their particular health issues like you did.
    Thanks for sharing!

  8. I would just caution to take care of what you have left of your pancreas. You are blessed to be in the honeymoon period, and you should preserve that at all cost…

    Unfotunately, there is no replacement for insulin therapy later on. Once you have started, it is a progression to total dependance on insulin. Whether that is 1 week down the road, or the end of your lifetime, that is up to you!

  9. Vanessa says:

    Thank you for telling your story. That was very interesting. Keep up the good work, you have produced your own miracle-cure.

  10. Dave says:

    It is well proved that a low carb diet can help you control blood sugar. However, we need insulin to live but type 1′s produce very little or none and in this case your suggestions are unclear!

  11. Mark says:

    I’m somewhere between a Type 1 and a Type 2. Having RA ( a nasty auto-immune disease), has not helped my pancreas. Slowly over time it has started to burn out. I’ve been controlling my diabetes with food and exercise but my RA was getting worse (due no doubt to the crap I was eating) and my fasting blood sugars were rising to 150 in the morning. Started paleo three weeks ago – fasting sugars are back to 95 and are remaining between there and 125. Feeling much more energy – RA flaring has been reduced dramatically (that could also be from the 3x increase in fish oil that I started consuming). So this health plan does work and congrats for getting your issues under control!

    Mark

  12. Sly says:

    To preserve your pancreas you probably should use insulin. It is proven that this can lenghtnen pancreas lifetime.
    I am also diabetic, very similar situation to yours. Now that I know insulin is good I started using it again.It has drawbacks, for example ocassional hypos, but I’ve chosen this path.
    BTW, I’m not strictly Paleo but close.

  13. I think it’s truly amazing that people can gain such control over a serious disease like type I diabetes with diet and exercise alone. It makes me wonder how much money we could save on healthcare if there was a way to make this diet sustainable for the majority of the population.

    -Kris

  14. sara says:

    WOW! Very inspiring! I have a newly diagnosed 5 yr old and have been searching and searching onn just anything that will help! They say he has a “rare” case? He has 2 antibodies that are negative and only 1 that’s positive….hmm we just keep praying against it. Your story has deeply moves me! Thank you for that!!

  15. Beki says:

    Hi,

    I recently got diagnosed with type 1, a couple of weeks after suffering a real emotional trauma. I’ve been following the paleo diet for about 2 months now, but am having problems as I dont need to take insulin to stay within normal range, but i’m afraid of getting ketoacidosis.
    Can a ‘diabetic’ go into ketoacidosis if their sugar levels are normal? I cant ask any of my health care team as they are so anti what I want to do, and just keep telling me I must eat more carbs than anyone else….
    its so frustrating. If I even look at gluten, my blood sugars soar.
    Does anybody have any advice about this, I really cant keep taking the insulin, it makes me feel so unwell (palpitations, burning sensation in my feet and legs, panic attacks)
    my emails is freebirdsflying@gmail.com thankyou so, so much.

    • Robb Wolf says:

      Beki-
      Please search the site for all the other Type 1 posts! Lots of good info AND the comments fromt he other type 1′s managing their situation with low-carb paleo is hugely valuable. Also give this a read from Dr. Mike Eades:
      http://www.proteinpower.com/drmike/ketones-and-ketosis/metabolism-and-ketosis/

      It is shocking that your providers do not know the difference between ketosis and ketoacidosis…shocking.

      • Beki says:

        Thankyou Robb, I will check that out now. I just havent found the right balance right, and probably not even the right diagnosis. I have something wrong with my adrenal glands, but the doctors here are totally disinterested. I havent even had a test done on my pancreas. Health system in the UK is not the best! I’ll let you all know how I get on. Thanks for getting the information out there, you are a god send.

    • Gayle Weed says:

      Beki,
      I don’t know if you got your question answered, but Nno, I don’t believe a diabetic can go into Ketoacidosis if their blood sugars are within the normal range. It takes consistent high sugars to cause that.
      And I totally know what you mean about not wanting to ask your doctor. I’m in the same boat. He totally disagrees with me going paleo. If it isn’t “traditional” it’s wrong. They think they everything down to a science that will work for everyone and if your sugars are not well managed, then you’re doing something wrong. Well, I say, their way sure isn’t working for me, so why should I continue with it?
      Good luck to you!

  16. [...] because Type 1 diabetes can be tied to autoimmune issues Robb’s site shows success stories (1 and 2) for putting it into remission as well.  Paleo offers not only the benefits to diabetes on [...]

  17. [...] there’s this guy, who claimed to be able to control his newly-diagnosed T1D with the paleo diet and crossfit [...]

  18. Trevor says:

    Hello Mark.

    Just purchased your book. I have read Protein Power, and Dr Cordains literature, and I am a fan of “The Primal BluePrint” all great reads.

    As a Type 1 of 28 years I mix Paleo with Dr Bersteins “Diabetes Solution” which assists with the Diabetes side of diet. Must read for all PWD(People with Diabetes)

    I do believe this fellow above, was indeed in the honeymoon phase but his story is truely remarkable and of benifit to any and all PWD.

    My insulin requirements have been cut by 50 % due to the reduction in CHO and I am doing the 30 day challenge on day 5 – and feeling Fab!!!

    Thanks for your writing, and reasearch and hopefully knew found focus on changing the views of the thousands of Profs, MD’s, and other health providers who preach the conventional ideology about food, it is long over due.

    Cheers!

    Trev

  19. [...] Real Life Testimonial: Controlling Type 1 Diabetes with the Paleo diet August 4, 2011By:Amber Karnes From: Robb Wolf | The Paleo Solution book and podcast | Paleo diet, Paleolithic nutrition, intermittent fasting, and fitness This is part of an ongoing series of real life success stories from people all over the world who have been impacted by the Paleo lifestyle and The Paleo Solution. Read Kyp’s story below. Hello, My name is Kyp and I am a type 1 diabetic born on the 5th Read more… [...]

  20. Tiffany says:

    Can any one tell me what does it mean when my son has a blood sugar of 141 at 10pm and then checked him at 3am and it was 400. He did not eat anything and the doctor had him on Lantus 24 hour insulin and then had problems one day so switched it to Levemir to try. He also is on Novolog for his meals. It did awesome for 2 weeks and then had problems again. I switched it back to the Lantus myself and it was better for awhile and now I am having problems again. He was 4 when he was diagnosed and he turned 8 yesterday. I get so frustrated I could cry and often find myself praying asking for help because I worry so much over his body and what the long term effect is.

    • Robb Wolf says:

      The blood sugar is not being controlled…inadequate insulin, too many carbs…you need to check with your doc to get tighter control.

    • jodi says:

      Hi there,

      I had a similar problem with Lantus. I was taking 4 units in the morning but it was actually too much for me so I was going low in the night (but I wasn’t aware of it). My doctor had me wake up around 3 – 4 in the morning to test if I was low. I was surprised to find that I was low because around 9:00 in the morning I would be quite high, without eating anything the entire night! My doctor said what happens that sometimes in the night, if you go low, your liver will shoot out insulin all of the sudden! So when you get up later with a high reading, it makes no sense.

      I’ve changed my Lantus down to 2 units and I haven’t had those early morning lows turning to highs later on because of the liver. I am very sensitive to insulin, some people are more sensitive than others. For mealtimes I use a pediatric pen for half unit doses. I have an amazing doctor – I hope yours can help you sort this out! Best of luck!

  21. [...] of units and the number of times they need injections of insulin.  Furthermore, in rare cases, adherence to the Paleo diet has reversed beta cell damage and rebooted the pancreas function in diab….  The mechanism behind this is unclear, although Robb postulates that it’s because the [...]

  22. Mark says:

    Hi guys,

    I’m starting Crossfit this week and have been doing some research on Paleo, but struggling to get my head around it and how it works – Amber – could I possibly contact Kyp and ask him specific questions I have? Would you be able to send me his email? I’d really appreciate it, thanks!

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